Parents worst nightmare when they know something isn't right with there kids.... but taking 5years to get the answer knowing it'll never be good news 😞 But knowing is half the battle, and fight I must for him!
All the very best for your little lad, i know how you feel, i have a daughter that is 31, she has struggled with her health a long time and now has feeding tubes and such in her tummy and loads of other stuff going on, good luck
Sorry to hear that, I doubt things could be much worse for you - your kids health is so important. Hope things improve for you and the little lad, even if only a little. 😔